FORWARD
This is the story of my life and near death experience.
This is not my normal style of blog writing as I often write short stories. This will be written in chapter form.
There is a lot to say.
I’m not writing this for entertainment, although as is customary, there will be humor. This is the story of cancer treatment gone very wrong and a brilliant team of Doctors that saved my life.
What happened to me is extremely rare. So much so that Doctors around the world are studying my case. If someone can learn from my experience than this will have been worth it.
But mostly, this is written by me, for me.
Please get yourself a big old beverage of your choice, sit back and get ready for the ride of my life.
Let’s take a quick review…
June of 2025, I was diagnosed with kidney cell cancer on my pancreas. Very unusual but that’s just me.
December 2025, it was found that there was a second tumor and the first tumor had grown.
Immunotherapy was the next step.
December 29, 2025, I had my first infusion of Keytruda.
I had an infusion every 3 weeks, Jan 21, Feb, 11, and one scheduled for March 4. I never made that one.
In addition to the infusion drug, I also took a pill every day called Lenvima. The Keytruda works with your immune system to seek out and destroy rogue cancer cells. The Lenvima helps the tumors slow growth.
Both of these drugs, like all drugs, come with side effect warnings. But the overwhelming benefit far outweighs the potential for serious or even fatal side effects. Keytruda is one of the most widely used and effective forms of immunotherapy.
It nearly killed me.
CHAPTER 1
Circling the Drain
It started innocently enough. In late January the first side effect appeared. I had serious pain in my mouth. Almost anything I tried to eat or drink hurt. Things like a carbonated beverage would send my reeling. Mint toothpaste burned. Coffee was too hot, ice cream was too cold…anything scratchy hurt. I was given a mouth rinse called Magic Mouthwash. It numbed my mouth enough to be able to eat something. My oncology team believed it was the Lenvima that was the cause. The daily dose was lowered to try and ease the effects.
In mid-February, I developed some super nasty nasal congestion. Almost constant nasal drip combined with the oh so nasty green gunk one often sees with a sinus infection. I went to my Ear, Nose and Throat doctor. He found no infections. Sent me home to use saline nasal spray.
Any food or beverage I ate or drank started to taste awful. Chemical. Also very common. I was not eating. In February alone, I lost 14 pounds. Fatigue was real. I napped every day for hours. I slept all night. I was able to force myself to get up and out every day but the time out became less and less. Plus the weather sucked. I was becoming very weak. Of course I was, I wasn’t eating. I had no ambition to cook or make anything and I wasn’t hungry. I tried to force myself to eat something. But the truth was IF I was taking in 400-500 calories a day, I was doing good.
The last 3 weeks of February are in ways, a blur to me.
I started having trouble walking steady. Think Weebles Wobble. I noticed I could not hold my head up or stand up straight. My neck and back hurt. Of course they did, cleaning 12 feet of snow off my car must have done that. My voice was almost gone. My eyesight became blurry. All known side effects of Lenvima.
On the final weekend of February, I knew I was in serious trouble. I had an infusion scheduled for Wednesday March 4. I figured I’d just wait until then and see the oncology team and deal with it then. I didn’t want to make a fuss. On Sunday March 1, a friend stopped by to visit and check on me. As we sat on the couch, I said to him, “I think I’m dying…” His response was what anyone would have said, “I know you feel shitty but this is the worst part. You’re gonna be fine”.





